Tag Archive: autismawarenessmonth


As a parent we want nothing but the best for our children and to watch them succeed. That still rings true when you’re a parent to a child on the spectrum only it’s harder to see the big picture or feel major judgmental guilt from yourself / others while your child is going through their daily struggles. Preeti’s post came up in my feed and it was a good reminder that I needed to tell myself, perhaps it will be useful to you as well. It doesn’t matter if your child is on the spectrum, is “normal”, has ADD or whatever their story may be all their paths will be different and it’s important to remember that being judgemental of themselves or other will get them no where. Be proud of who you are and what you yourself have accomplished, because this is your path that you are taking in life.

 

Original writer:Preeti Dixit
Original post: https://themighty.com/2018/03/from-one-autism-parent-to-another/?utm_source=Facebook&utm_medium=Autism_Page

 

Being an autism parent can be hard. Not only do we have to deal with substantial challenges while raising our kids, but we have to do so while facing social isolation. Ours can be a lonely road, marred by self-doubt and plagued by lack of validation.

While other parents talk about their kids excelling at school and sports and extra-curricular activities, we are trying to help our kids manage their sensory issues — perhaps to brush their teeth without crying, wash their hair without screaming, cut their nails without panicking, and generally go through the day without having a meltdown. Only another autism parent can understand why my son getting a haircut at a salon makes me want to celebrate, and why my son playing at the park makes me want to cry.

Parents of neurotypical kids cannot understand what we are going through because they haven’t experienced what we experience daily. It is important to keep this in mind, and not judge them or be affected by their judgment. It is also important to accept that our paths diverged the moment we started our journey and stop comparing ourselves to them and our lives to their lives.

It is very much possible to live a happy and fulfilling life with autism once we let go of our idea of a “good” life and focus on the good (which you will find in abundance once you start looking) in our life instead.

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So to keep up with April being Autism Awareness / Acceptance month I wanted to share this animated video.

In my opinion it is by far one of the best videos for children of all ages to see so those who are on the spectrum get a little more compassion/understanding.

 

 

 

At first I wasn’t sure how / if I was even going to share this on the blog but with today being the start to Autism Awareness Month I think it would be rather fitting to finally share it.

I am writing this in hopes that someone can help or perhaps a bunch of people can help. I’ve already contacted many children’s charities, autism foundations as well as big name companies only to be turned away and I’m starting to feel deterred in even asking for help anymore. Like many parents with children who have Autism daily tasks that are simple and enjoyable for other children can be a huge task to even start for our family (like going for a walk when it’s nice out). For those who have read my blog before you are aware that my soon to be eight year old little man is on the spectrum and was diagnosed a couple of years back with being high functioning autism. Even though he is a happy, healthy little boy like anyone on the spectrum has his challenges it’s why I’m asking for help with our GoFund Me to help make his life a little easier. You see we are without a vehicle and when we had a vehicle (it was under Keegan’s biological fathers name and when we divorced he sold it) Keegan loved going on nature walks, special events (mostly train or animal related), camping and going on other random adventures that little did he know were educational all while being fun. Since 2013 Keegan and I have had to rely on family/friends for help, however since a majority of them work a standard 9 to 5  we can only get transportation help on weekends which means that during the week Keegan and I take public transit. This is overly tricky for Keegan since he gets overstimulated by the sounds/smells on public transit. Since we have no other option and are stuck to rely on public transit Keegan regularly shows up to appointments physically tired from being overstimulated, can’t focus at the tasks that need to be done and has mood issues/out bursts. If this wasn’t an issue in itself he has also missed out on school field trips, birthday parties, specialized events (like the ones held by the Canucks Autism Network and Pacific Autism Family Network) and even after school programs such as soccer, swimming lessons, gymnastics..etc. I know that asking for help with a vehicle is a lot to ask for but hopefully someone can help so Keegan can help feel like a “normal” kid and partake in things that he shows interests in.

I’ve already contacted every children’s charity, autism support group/organization/charity, Justin Trudeau /my city mayor / city counsel / other branches of the government, every local vehicle dealership and big name companies…etc all to be told “We’re sorry to hear about you and Keegan story but at this time there is nothing we can do to help” . Charities (like Variety, United Way, Presidents Choice Children’s Charity..etc) say “Funding is limited” or ” We don’t help with transportation have you tried contacting local companies“. Meanwhile those companies reply with “Sorry we don’t help individuals only charities , have you tried them?“.  I have even applied for disability grants, low income grants and children’s with disability grants all to be told they can’t help with transportation either. I have well over a hundred e-mails (No, I’m not exaggerating) to show that all these places that claim to help children with disabilities don’t really want to help ALL the children with disabilities even if their parent has letters from professionals (like their child’s pediatrician and speech therapist) backing up their request for help along with every piece of medical history showing that their child does in fact have autism.  Even our GoFund Me hasn’t had much help, don’t get me wrong I am very grateful for any donation no matter how big or small but I just though that perhaps with it being shared well over 200+ times we would of had more donations by now (as of writing this we’re at $20).

I’ve started asking for help and applying for grants at the start of this year and every day since then I’ve heard some sort of “No, we’re not going to help your son” even when asking if they could just share our GoFund Me link. I’m a mixed of emotions (angered at the so called children’s charities / autism foundations, frustrated at the situation as a whole, saddened by the fact that it seems like I really am doing this all on my own which feels like it’s going to take forever since we’re considered / are low income…etc) and as much as I feel like giving up I know I won’t/can’t because it truly would make my son’s life so much easier / better for him . It’s just now getting harder for me to stay true to myself when I am then asked for help by those in my son/my life or even complete strangers (Yes, I’m that person who will give a stranger my shirt or buy a homeless person a warm drink / meal…etc )because even though it’s easy to turn people away or leave someone in the lurch some times the smallest gesture can give someone hope and help them better themselves even if it is just for 24hours or perhaps change their mind about helping out others when they see someone in need of a helping hand.

If you want to read more about my son and my story or help our GoFund Me (by sharing or donating) our story can be found here :

https://www.gofundme.com/letsmakelivingwithautismeasier

I don’t really know how else to end this blog entry other than by saying that it really is true that parents will try to do everything / anything to help their children and to those who may be in a similar situation as my son and me don’t give up. I know you feel like you want to but don’t do it, you will find a way ❤

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